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The Late Talker

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May 7, 2001
Apraxia: Early Identification and Therapeutic Parenting

This meeting was taped - information coming soon


Location: Children's Specialized Hospital (Click for directions)
Date: May 7, 2001
Time: 7:00 PM to 8:30 PM

Mountainside: 150 New Providence Road, Mountainside, NJ 07092-2590 (908) 233-3720
Because we have reached our limit in the auditorium at many meetings, it is important to RSVP. Please RSVP to kiddietalk@yahoo.com , or leave a message at 732. 871. 6013. (At the holiday party we were about 70 people over the limit of the auditorium!)

Speaker: Justine Joan Sheppard, Ph.D., CCC-SLP
Adjunct Associate Professor of Speech Pathology Teachers College,
Columbia University New York, NY

The following is a statement from Dr. Sheppard about this month's meeting. As many of you already know, she is one of the speakers for this year's NJSHA convention where she will speak about educating hearing apraxic children in schools for hearing impaired/deaf children. This will be a fascinating meeting with a world renowned expert on oral motor disorders. Not only will we learn how to distinguish apraxia from a late talker, but we will learn how we can help our children with apraxia learn to talk at home! As always, we will have a question and answer time after the meeting. Due to last month's meeting being cancelled due to snow, we will again have the samples of EFA/surveys for the feedback research.
Lisa Geng
President Cherab Foundation

"We will discuss the basic problems in apraxia that may interfere with a child's learning and performance for speech, eating and controlling saliva. As we identify the basic problems, we can select therapeutic parenting strategies to support the child's efforts to advance."

Cherab Foundation's EFA Feedback Research
Lori Roth, MS, CCC-SLP, gave out surveys for our feedback EFA research. This is preliminary to a more clinical study that is now underway which will be overseen by Dr. Agin and some of the top researchers in this area. If you are participating in the feedback study, and need a survey from Lori Roth, please email her. Please fill in the survey before you supplement your child, and take notes over the next month as to any changes. At the February meeting, those participating will fill in another survey so results can be compared. When you hand in the 2 surveys and notes, another 30-day supply will be given to you.

Cherab Apraxia Survey For Magazine Article
A writer for a major magazine is on the Cherab email list, and has sent out a list of questions for both parents, as well as professionals. Our list, which is overseen by Developmental Pediatricians Dr. Agin, Dr. Laveman, and other medical, speech and educational professionals who are there to answer questions, has the option of viewing these posts online once you are a member.

Our January 8th meeting was of interest to anyone who has a child with neurologically based disorders like apraxia, and was interested in apraxia research. We had an incredible speaker for this subject, Dr. Patricia Kane, who is one of the world's authorities on EFA supplementation. We would like to thank the Children's Specialized Hospital for taping this brilliant presentation, where she covered some of the information on mercury in fish, before it was released by the FDA and 20/20. We would like to also thank the developmental pediatricians, Dr. Marilyn Agin and Dr. Carfaxo, who were there to answer questions.

More information coming soon on research projects. If you are not able to attend our meetings, but are interested in working with us in various research projects as a parent, professional, or hospital, please email Dr. Marilyn Agin at Mamadoc111@aol.com or Lisa Geng at kiddietalk@yahoo.com Coming soon: virtual meeting with the experts, as well as the ability to "attend" our meetings online. Join our information list to find out upcoming dates.

We will have our new feature book available for $16 (list price is $16.99) - The New Language Of Toys-Teaching Communication Skills To Children With Special Needs from Woodbine. Many SLPs as well as parents believe this to be an "excellent book for both parents and professionals!" This book will help you use existing toys from around your home to help "ANY" child who has a delay in speech. It even shows how to make toys that can be used for therapy, and explains why children may have delays in speech.
Ballentine Books will again provide Dr. Stordy's book "The LCP Solution" at this meeting for $12 (list price is $14. Orders by mail are slightly higher to compensate for shipping costs,) and this will be a fund raiser as well! Dr. Agin believes this to be a credible book, "that is worth exploring." Please let us know when you RSVP how many books you would like.

If you can not attend our meetings but would like to support our non profit and benefit from the low prices we offer on the "must have" items we offer, please email me (Lisa) at kiddietalk@yahoo.com

We will have Nancy Kaufman's Speech Praxis Kits both beginner and advanced available for you to look at or purchase.

If you need a new member package please email Karen Eardley at karen_eardley@beechwood.com . Due to funding, for now these packages are only available to those who attend our meetings.

We appreciate if you could bring a refreshment, please email August Carlton, our Refreshment Coordinator, at Msaug2271@aol.com

Here are some other scheduled events. For more information, please sign up for our informational email list by clicking on the egroups button below.

Speaker Biography:

Justine Joan Sheppard, Ph.D., CCC/SLP is a specialist in motor speech and feeding disorders. She is a licensed speech pathologist, in private practice in New York, New Jersey and South Carolina, and is a consultant for staff development and case management at facilities in the New York-New Jersey area. These facilities include The Matheny School and Hospital, Woodbridge Developmental Center, and Cerebral Palsy of Monmouth and Ocean Counties.

Dr. Sheppard is Adjunct Associate Professor of Speech Pathology at Teachers College, Columbia University where she teaches courses and workshops in dysphagia, infant intervention and treatment of oral motor dysfunction. Her research interests are oral pharyngeal reflexes, dysphagia in developmentally disabled and mentally retarded populations and acquisition of oral motor behaviors. She has given many workshops and papers and is the author of several publications on infant development, oral motor assessment, and feeding and swallowing disorders.

Her publications include, Pediatric Dysphagia and Related Medical, Behavioral, and Developmental Issues, in B. Sonies (Ed.) Dysphagia, A Continuum of Care, Aspen Publishers, 1996; a book co- edited with S. Rosenthal and M. Lotze, Dysphagia in the Child with Developmental Disabilities, Medical, Clinical and Family Interventions, Singular Publishing Group, 1995; Managing dysphagia in mentally retarded adults, Dysphagia, 1991; Nutritional correlates of dysphagia in individuals institutionalized with mental retardation, Dysphagia, 1988; Dysphagia in Infantile Cortical Hyperostosis (Caffey): A case report, Developmental Medicine Child Neurology, 1988; Assessment of oral motor behaviors in Cerebral Palsy, Seminars in Speech and Language, 1987; and A dysphagia program for the developmentally disabled, New York Medical Quarterly, 1987.

The Cherab Foundation is a world-wide nonprofit organization working to improve the communication skills and education of all children with speech and language delays and disorders. Our area of emphasis is verbal and oral apraxia, severe neurologically-based speech and language disorders that hinder children's ability to speak.

The Foundation is committed to assisting with the development of new therapeutic approaches, preventions and cures to neurologically-based speech disorders. We bring together parents and medical, research, and educational professionals. Please join us and help to give our children a smile and a voice.

Join the Cherab Foundation's free email support discussion list

Cherab Foundation
Communication Help, Education, Research, Apraxia Base
P.O. Box 8524
PSL, Florida 34952-8524
Phone: 772-335-5135

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